When all else fails, feel free to use our secret weapon: BETTY. Betty is the make believe woman we blamed for everything.... Lost hearing aids, missing money, stale coffee: Betty.
Excerpt from...40/40 Vision
In November of 2013, I brought Jazz and my mom to a caregiver conference. In the midst of my ready-made speech, Jazz raised her hand.And so I called on her."Mom Mom, tell everyone how fun grandma's funeral was " Jazz just put the "fun" in funeral. I had to stop and think.
My gram never had a driver's license. She barely left the house, even when she was healthy. She spent the last six years dying from a broken heart and Alzheimer's disease. And yet my gram, somehow, made forty new friends that were half her age during that time too. And they all came to say goodbye. If she were here, she wouldn't have known any of them. But they knew her.They were laughing, crying, retelling stories, singing her favorite song: "Let's Make Believe That We're Happy." They were having fun.I was in awe. It made me think maybe our caregiving fiasco wasn't a fiasco at all. Maybe, just maybe, we got a few things right.
You should have seen this wake; it was standing room only. And, damn, was it fun.
Excerpt from...The Dread Zone
...Full-time caregivers don't enter a dread zone as part of their daily routine. Their tactic is adapting to a world that doesn't appear to have a beginning or end, so they adjust by staying even keeled-managing high energy, low energy, no energy, emergency, insomnia, exhaustion, hysteria. Months of full-time caregiving can feel like one long day. But it's not the sort of thing that is "dreaded," like winter, or taxes, or getting a colonoscopy. There's no emotional buildup in full-time caregiving to produce a feeling of daily dread, like with part-time caregiving. They both have their challenges. There are a lot of incredible people in the world who aren't capable of this job at all. I commend anybody who's been mastering the art of compassion, patience, tolerance, swallowing tears, and biting their tongue by being a caregiver at all, even if it's visiting "Dad" for just an hour a day. Let's not compete for most hours logged. The key to effective caregiving isn't about the big picture; it's captured in the tiny moments.
Excerpt from....What Now? Life after Caregiving
I woke up this morning easy enough. But as I crept down the stairs to make Jazz breakfast, I turned and yelled in a whispery voice, "Be quiet when you come down, sweetheart We don't want to wake G.G. " As soon as the words escaped my lips, it was as if the biggest bully on the playground had punched me in the gut. I grabbed my stomach with one hand, the wall with the other because I thought I was going to puke. When that feeling passed, I nice big jolt of "crazy" hit. And then after that, I waited and waited without moving an inch. I was waiting for the big blow, for Jazz to yell back, "Mom, you silly head G.G.'s dead " There was nothing but silence, which meant Jazz must not have heard me. She's like my conscious; she'd never let something like that slide. I concluded she wasn't paying attention. Thank God. Anyway, that's how I started day four of my new life without G.G. I was ending it by reading to Jazz with tears streaming ferociously down my cheeks, speckling her book, wrinkling its pages. "Mama, Mama? Are you okay?" she asked."I'm okay, babe. I just miss G.G."And then Jazz went to the window, looked up into the black night, and said, "She's right there. When you miss her, just look for the brightest star in the sky and wave. And you won't miss her anymore."
Описание: The REACH OUT Caregiver Support Program offers a multi-component, tailored, and flexible intervention for caregivers of people with dementia that is focused on the evidence-based therapeutic strategy of problem solving.
The children of people with chronic illness and pain suffer quietly. "Why Does Mommy Hurt?" is a joyful, yet honest, portrayal of family life burdened with chronic illness. This is a delightful story told by a young boy learning to understand and cope with his mother's illness. The story creates natural opportunities for families to talk about both the symptoms of chronic illness, and how they affect family life. Even more importantly, the story puts power into the hands of the children. It also offers a helpful "Tips and Resources" section for parents This book is appropriate for a wide-variety of illnesses associated with chronic pain, such as: Lupus, Lyme Disease, ME, CFS, Fibromyalgia, Arthritis, Multiple Sclerosis, Autoimmune Disease, and many others.
With retirement approaching and his marriage on cruise control, George Shannon left for a much-needed vacation with his wife Carol. Their lives changed forever on their final night in Cabo San Lucas, when George awoke to find that Carol had suffered a debilitating stroke.
As they rushed back to their hometown of Pittsburgh, questions, doubts, and fear consumed George's mind: Would Carol survive? What level of care would she need? Would George be up to the task of serving as her caregiver, a role he knew nothing about?
During the next seven years, George and Carol would face a series of medical and personal challenges that would relentlessly test their resolve. Every day George would help Carol meet her needs, and every night, he would go to bed wondering whether he had done enough. He soon discovered that the caregiver role comes with unexpected rewards--gifts that would leave him a better, happier, and more fulfilled man. The Best Seven Years of My Life is the tale of an unlikely caregiver, a journey to rediscovering humility, and the story of a man blessed with the amazing chance to fall in love all over again.
With retirement approaching and his marriage on cruise control, George Shannon left for a much-needed vacation with his wife Carol. Their lives changed forever on their final night in Cabo San Lucas, when George awoke to find that Carol had suffered a debilitating stroke.
As they rushed back to their hometown of Pittsburgh, questions, doubts, and fear consumed George's mind: Would Carol survive? What level of care would she need? Would George be up to the task of serving as her caregiver, a role he knew nothing about?
During the next seven years, George and Carol would face a series of medical and personal challenges that would relentlessly test their resolve. Every day George would help Carol meet her needs, and every night, he would go to bed wondering whether he had done enough. He soon discovered that the caregiver role comes with unexpected rewards--gifts that would leave him a better, happier, and more fulfilled man. The Best Seven Years of My Life is the tale of an unlikely caregiver, a journey to rediscovering humility, and the story of a man blessed with the amazing chance to fall in love all over again.
Автор: Susan Miller G. Название: My Life Rearranged: Musings of an Alzheimer Caregiver ISBN: 0967958407 ISBN-13(EAN): 9780967958408 Издательство: Неизвестно Цена: 2614.00 р. Наличие на складе: Есть у поставщика Поставка под заказ.
Автор: Persiani Sarahbeth Название: Run Walk Crawl: A Caregiver Caught Between Generations ISBN: 1733399054 ISBN-13(EAN): 9781733399050 Издательство: Неизвестно Рейтинг: Цена: 2344.00 р. Наличие на складе: Есть у поставщика Поставка под заказ.
Описание:
Run, Walk, Crawl- A Caregiver Caught Between Generations is gaining attention and accolades from readers, reviewers and experts alike. Touching upon modern day issues, this highly relevant memoir was named:
National Indie Excellence(R) Award (NIEA) Winner for Caregiving
National Indie Excellence(R) Award (NIEA) Finalist, Book Cover Design (Non-Fiction)
Winner in the 2021 Next Generation Indie Book Award (NGIBA) - Christian
Silver Medal in the Independent Publisher Book Awards (IPPY) - Non-Fiction Cover Design
American Book Fest's 2020 Best Book Award Finalist in Christian Inspirational and Women's Issues
Why would a woman, at the height of her career- leave?
The workplace can serve as both a buffer zone and field of landmines for someone in a family caregiver's state of mind. In Run, Walk, Crawl- A Caregiver Caught Between Generations, Sarahbeth Persiani provides a deeply personal account of what it's like to live the pressure-cooker lifestyle of working full-time while caring for her family, an elderly parent, and least of all, herself.
Readers trek alongside Sarahbeth during her caregiving years, catching a glimpse into modern day issues of hoarding, opioid addiction, dementia, women's health, and sibling differences, all while navigating the healthcare system and todays multi-generational workforce.
By no means prescriptive, but with honesty, humility and a smattering of 1970's throwback references, this story offers relatable insights into one woman's transformation with lessons for us all.
Описание: Alzheimer's is a frightening, frustrating disease with a striking emotional and physical impact on all involved. However, knowledge and the right attitude can make the experience more bearable, as M. Joanne Roth (M.S. in Counseling from Portland State University), shows in Thanks for the Memories: My Journey with Alzheimer's as a Caregiver to My Mother. With the wisdom of one who has been there, Mrs. Roth relates a wealth of information on the "multiplied effects" of memory loss and the caregiver's role, as experienced through her own mother's care. Her no-nonsense explanations offer encouragement and support as she reveals that such care can become positive experience when approached with patience, understanding, and faith in God. By realistically depicting what to expect and offering tips on handling difficult situations, Roth's dual personal/practical approach makes this a valuable tool for those facing an Alzheimer's diagnosis.
Автор: Kemp Jo Название: Reflections for a Caregiver ISBN: 1419695398 ISBN-13(EAN): 9781419695391 Издательство: Неизвестно Цена: 3102.00 р. Наличие на складе: Есть у поставщика Поставка под заказ.
In Sickness and in Health is a personal account of one marriage that stood the test of time, not perfectly but which lasted thanks to those three components of the marriage equation: passion, intimacy, and commitment. It is an honest story of a health journey through life with one partner with the joys and the sorrows, the pitfalls and the promises, and most importantly, the faith that helped manage it all.
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